Wednesday 11 June 2014

Down Syndrome Network: Fighting for Equality



Ever since its founding in 1986 as Parents of Children with Down Syndrome, the Down Syndrome Network of Montgomery County has worked and fought for equality, recognition and normal treatment for people with this condition. The organization arranges speaking engagements for professionals who are well versed in the disorder and promotes active education of parents, healthcareprofessionals and teachers in the various aspects of Down Syndrome.

The group also educates people with Down Syndrome themselves and gives classes on societal integration, maintaining focus while in class or at work and working with advocacy groups to promote understanding of Down Syndrome. Perhaps the group’s most important mission is to correct misunderstandings and misconceptions about Down Syndrome, of which there are, unfortunately, many.

For example, many people believe Down Syndrome to be an uncommon or rare condition; however, one out of every 691 babies in the United States will be born with the disorder. Also, while it may be true that, in the past, people with Down Syndrome didn’t live long lives, medical advances and increased knowledge of the condition have brought Down Syndrome-affected people’s lifespan up to nearly average levels. Contrary to popular opinion, Down Syndrome is not generally hereditary; only one percent of people with the disorder gained it genetically. In most cases, it occurs randomly.

Through its work, the Network, and other organizations like it, has raised awareness and built acceptance of people with Down Syndrome. Because of these efforts, Down Syndrome-affected people no longer have to waste away in asylums and other institutions. Almost all of them today live either at home with their families or have progressed to being able to live on their own. As a primary part of its mission, the Network seeks to empower people with Down Syndrome to be able to make crucial decisions about their own lives and medical care.

When it comes to education, great strides have been made over the last 20 years in integrating people with Down Syndrome into regular classes. While it is true that people with Down Syndrome have developmental disabilities, they are hardly the stereotype that people once perpetuated. In fact, through the hard work of intrepid educators and advocacy groups like the Down Syndrome Network of Montgomery County, many people with Down Syndrome are graduating high school with regular diplomas and even going to college.

The Network wants and needs both monetary and volunteer help from the community. It recognizes and values such voluntary contributions and encourages a well-informed public to be active in the promotion of the inclusion of people with Down Syndrome in everyday life and activities. The Network also strives to support ethical behavioral research in the scientific community, along with other types of research sanctioned within established human rights guidelines. In short, the organization envisions a fully integrated world where people with Down Syndrome can achieve everything they possibly can while being encouraged by the community.